April27_2016

It is Wednesday night now and it has been a big day. First day was arrival day, mostly spent at hospital. sEcond day was the day we talked to team and said Dad was going to go for the home hospice option. Plan was that Dad would come home the next morning, weds and a number of things would happen before and after that.  Today was that day and it was a big one. With the bed gone we did a bit more cleaning and reorganising of remaining furniture but as we did not know what bed would look like  thought we would wait for that. Bed and oxygen delivery was done by 9.3o but then it all started to go west. Several other deliveries arrived with either equipment or unmarked bags of supplies but no Dad. tUrns out they could not find Dads shoes (this is because he arrived in sippers approx 7 days before) so he stayed for lunch and did not arrive home till close to 3pm. Big process to get him out of transport and onto the waiting bed, lost of dramas and gramps was very stressed, but said he was happy to be home, the room looked great, he felt very proud to be brought in there and have us all waiting. Then all he wanted to do was sleep which he did till the Greg and Krista boys started arriving around 5.30. One by one the paid a visit and Dad was happy to see them, had little chats, asked them about their stuff, very cute. He sat up for nonis little dinner she had made him and ate almost all of it, did just a few of the men's and now is tucked into bed hoping that he can fall back to sleep.

He is very week but wants to do some things for himself if he can. wHere he cannot Noni is ready to dive in. So although he has only been home for approximately 6 hours it has a positive feel and all of us are happy he is home. But it all depends on weather he regains some of his strength and can get on top of the coughing, that really exhausts him. 

Tomorrow we will see his case manager and the nurse from his team and we will go through a lot of questions we have now that he is home. We also have a number of people we are talking to about a live in person. lInda has already begun that process and Noni now seems to be willing to give that a try, but that is as far as we have got to.  We are hoping that we can get through a full week of the program to see how the week works but there are a lot of ifs, if and how much he improves, how Noni copes with the responsibility and the duties, how able they are to be on their own for any part of the day, etc. it was a pretty hairy start today and that was with Linda and I  on deck. So we just move forward from here.